Friday, 11 November 2016

Unplanned trip to Moorfields

So despite my best efforts to keep the faith this week, I caved and had to phone the doctor. Aaron's eyes had been tearing more than usual, a textbook symptom of the congenital glaucoma and I was convinced his pressure was sky rocketing. Also, his left eye has been red and has this goopy piece floating around. I did try and write it off. I showed a friend and my mother, hoping to hear 'oh it's probably nothing, don't worry' - but really who would say that about a six-month old baby who's just had eye surgery and whose eyes are visibly running? Of course we all agreed it wouldn't hurt to phone the doctor. Luckily the doctor agreed to see us in yesterday's clinic. Adam wasn't able to get out of work so I packed all the gear (the buggy, in case Aaron wanted to nap, the carrier in case he wanted to have a look around, the variety of toys to keep him entertained, the nappy changing kit, etc, etc) and set off to the station hoping we'd find a nice person to help me get the buggy up and down the two flights of stairs it takes to get to the platform.

We made it to Moorfields without a hitch and I managed to keep Aaron entertained while we waited but then I noticed we were both warm and wet. Naturally we had to go change our clothes right when we were due to see the doc but at least we didn't have to go into our appointment covered in wee (just covered in spitup as it were)!

The doctor checked Aaron's eyes while I sang Wind the Bobbin Up (!) and confirmed that the surgery is still successful and the pressure is down. The watery eyes are from the stitches dissolving and the red eye is party to this also - the gunky bit is mucous stuck to the end of a stitch. Yum.

I felt relieved to say the least. I was convinced the surgery had failed and poor Aaron was going to start losing his vision but thankfully he's fine! I will try and relax a bit knowing he's in good hands and in the meantime will stop trying to Google '360 degree trabeculotomy success stories'...I think the Internet isn't helping increase my sense of positivity which is ridiculous since the stories I'm looking at are about regular trabeculotomies and not 360 degree ones.  I still can't find anything specific to our surgery that isn't a medical study requiring a statistics textbook to help decipher but maybe that's for the best. Perhaps we are writing history ourselves when it comes to treatment for congenital glaucoma...?

1 comment:

  1. If there's one thing I've learned with having Hannah - Dr. Google is NOT your friend : )

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