Two weeks post trabeculectomy

Just over two weeks ago we turned our baby boy over to the team at Moorfields to perform the 360 degree trabeculectomy* for Aaron's congenital glaucoma. Aside from a bit of redness and the eye drops we have to give him four times per day, you'd never know he's had surgery! To give you a better idea of Aaron's journey we've gone from:

2/10/16 - three weeks before surgery

28/10/16 - one week after surgery

6/11/16 - two weeks after surgery

He seems to be getting better every day, thankfully! Bouncing around, trying to crawl and just generally being super cute :)

That said, I still worry about every little symptom, things like:

• He's still sensitive to light. Not as bad as before but is this normal? Will it always be like this?
• His eyes tear up sometimes. Again, is it normal? Is it recovery from the surgery? Is it because we're running the heat now and sometimes the dehumidifier?!
• Eye boogies. They're white and not infectious looking (gross, sorry) - and infrequent. I have eye boogies, I'm assuming babies just get them?
• His eyes are still large. Are they meant to go down in size or will they stay big? Does he just have big eyes generally?!

Trying not to be a neurotic mom that calls up the doc every time I notice something, just paranoid about his eye pressure going back up or of him getting an infection. Surely his corneas aren't going to cloud up over night and I'll miss it and he'll be blinded for life? (right?!)

It's really hard because even though babies don't come with a manual, they at least come with friends who've had babies who can give advice, an NCT group (here in the UK anyway) and failing that the good old Internet (Mumsnet, Netmums, What to Expect, etc.) has plenty to say. Not all of it is accurate or appropriate but that's beside the point - there's tidbits to feast on and draw one's own conclusions.

The tidbits I've found to feast on for primary congenital glaucoma with infantile onset (the proper name for it, if you really must know) treated with a 360 degree trabeculectomy are things like this:

Surgical outcomes with 360-degree suture trabeculotomy in poor prognosis primary congenital glaucoma and glaucoma associated with congenital anomalies or cataract surgery

Reduction of Intraocular Pressure Using a Modified360-degree Suture Trabeculotomy Technique in Primaryand Secondary Open-Angle Glaucoma: A Pilot Study

On the one hand I am grateful there's anything at all to read. On the other hand, you try reading that on three hours sleep with the Fisher Price Roarin' Rainforest Jumperoo bleating in the background. Oh and do it on your iPhone just for giggles. ;) 

*I've seen trabeculectomy/trabeculotomy spelled both ways. Which is right? Is one American and one British? Our doc spells it trabeculotomy