Trying to be 'normal'

Thanks to our happy checkup at Moorfields on Thursday, I was able to take Aaron to a Halloween party with our NCT friends. It was so nice to do something 'normal' and spend an afternoon just watching the babies play and having nice food and coffee (being able to finish a hot beverage is such a luxury). I did have to give Aaron his drops at one point but one of our friends kindly helped me hold him and even sang to him whilst I tried to aim the tiny dropper at Aaron's squished up squirming face! We've definitely survived the last week with lots of help from friends, everything from prayers sent from afar to wonderful people giving us wine, flowers, chocolates, homemade goodies. Our families have also been great, calling, texting and Face Timing frequently to check on us!

Aaron continues to be a trooper through it all and his little eyes are tracking and following everything. He still tends to look down a lot but the orthoptist thought this was more due to his squint than the glaucoma so I'm not sure whether we'll see a change in that until we get through the December exam. He also is still sensitive to light sometimes, we can't bath him with the overhead light on (it is rather bright) and when he lays on his back he keeps his eyes shut. But he opens them a lot more than he used to.

His physical development seems to be carrying on as it should (I think??), he's crawling backwards, doing pushups and starting to bang around more in the jumperoo vs. just playing with the toys. The two areas where he's struggling are sleeping and eating. The sleeping is a nightmare (no pun intended) - he's napping more in the day now, which is good (and isn't enough that it should affect nights), but he won't settle after his night feeds and can scream for up to two hours before going back down. Last night Adam had to bring him downstairs at 4 am and the little monkey fell asleep on the couch.

Eating is improving a bit in that he's drinking his milk feeds properly again but feeding him solids is a bit of work. Before the surgery he would eat off a spoon without so much messing about, now he wants to lick what's on his hands, his bib, etc. and he is less interested in the spoon. A complete clothing change is usually necessary afterwards. However, I don't know that all this has anything to do with the glaucoma - I think he's just being a baby!

Our little pumpkin

Crawling under the kitchen table this morning