Up and down

Another long night here with Aaron waking every 1-1.5 hours. His cries sound upset vs grizzly so for the time being we have stopped any sleep training and are picking him up when he cries.

This morning around 7:30 the cries turned to little coos and I was excited to see a big smile when I lifted him over my head. However, he kept his eyes snapped shut tight like he used to do. I changed him and brought him downstairs for both sets of drops, which he yelled through. He kept yelling after the drops so I put him in the jumperoo, where he played for a few minutes with his eyes partially open. He didn't seem sensitive to the light, it just looked like his eyes were sore and he was protective of them.

Playtime was short lived, he took an impromptu nap that ended as quickly as it started and then was ready for business! He spent an hour or so on his foam mat playing with his toys and creeping around like a little lizard. His eyes were open - the redness is going down just a bit - and he seemed alert and happy. So nice to see him happy and seeming comfortable!

He was back in upset mode by mid morning when a lady from Moorfields called to check on him - she could hear him down the phone. She wanted to know how we were managing Aaron's pain and recommended adding ibuprofen alongside the paracetamol we were already giving him. She said he would be suffering for potentially 7-10 days post surgery given the magnitude of the operation and that he had both eyes done. It seems his behaviour on Saturday where he was so chilled and happy most of the day was a fluke - maybe he was over excited with his new vision, who knows, but it coloured Adam's and my expectations and we were feeling thrown by the unhappy camper we saw on Sunday. It was good to hear Aaron was doing ok although it's not great to know he's suffering.

Lots of naps today and another good stretch of playtime with his eyes open, and of course I'm following the advice on his pain meds. Fingers crossed he continues to improve and that we have nipped this congenital glaucoma in the bud. We go back to the clinic at Moorfields Richard Desmond Children's Eye Centre on Thursday, really hoping for good news in terms of the eye pressure being down, cloudiness disappearing and overall healthy healing of Aaron's precious eyes.