360 degree trabeculotomy - continued success 9 months on

Another good visit to Richard Desmond Children's Eye Centre at Moorfields this past week. Aaron's last appointment was in the end of April, so this was the longest we've gone with no eye exams since he was first diagnosed with congenital glaucoma last October. Since the last visit, Aaron's vision has been continually improving and we've noticed things like:

• His squint is improving. When he's really tired one eye still goes a bit lazy but in general Aaron can focus more with both eyes and they are less 'rolly' for lack of a technical description 
• Less sensitivity to light. We can push Aaron in his buggy with no cover on him, he goes on the swings and refuses to wear a hat or glasses (lots of sun cream) but always seems fine. Less squinty, less uncomfortable. And we can change him with overhead lights on.

All good things and really positive to see that the 360 degree trabeculotomy results continue to hold. At 14.5 months, Aaron's the oldest person to have had the surgery so we don't have a lot to benchmark against but Mr. Brookes said Aaron's vision is good enough that he could drive a car (if only he could reach the pedals).

With the exception of the checkups at Moorfields, congenital glaucoma isn't something we think tons about these days. That said, we try not to take for granted how lucky we are. All the cogs were really in place for little Aaron  - where we were initially referred for the squint, where we were referred upon the congenital glaucoma diagnosis, encountering someone like Mr. Brookes who was willing and able to perform the 360 degree trabeculotomy, and just the sheer fact that Aaron's Schlemm's canals were fully formed in both eyes. We are truly blessed that we are now having conversations about normal toddler things vs continuous hospital appointments, and likely more surgeries and EUAs, which is generally the case when one is diagnosed with congenital glaucoma.

So that's it for now. We go back to Moorfields in December to see Mr. Brookes and hopefully we will be reporting Mack more of the same!