Unless you knew any better, you couldn't tell this kid has glaucoma. Aaron had a great first Christmas and New Year's, crawling after fairy lights, eating wrapping paper and trying to pull over Christmas trees. He seems to be able to spot the most dangerous thing in the room and goes after it with a speed you wouldn't think achievable for someone who's only recently learned forward mobility.
In all seriousness, Aaron's vision is really good. Following the 360 degree trabeculotomy in October and the subsequent EUA in December, we've noticed a few things:
He recovered very quickly from the EUA- the day immediately following he was completely fine, by the second day he was a little tired but that was it. I think Adam and I found the procedure more traumatic than he did.
His squint seems like it is starting to self correct? It's not gone but definitely looks better. The right eye also seems like it wobbles less. Guessing his brain has some re-wiring to do to adjust to the cleared corneas.
He is still sensitive to light if he is on his back or being too reclined (like in the car seat). Any other position he does pretty well and luckily it's fairly dim outside this time of year so walks outdoors are also manageable. We can bath him with the light on now although he still squints a bit. Same with changing him. He's not super keen on very bright fluorescent lights but really, who is?
His eyes themselves look great, nice and clear clear and as noted above, he is very observant. We took him to the GP last week for another issue and the GP remarked what good vision Aaron had (he kept following the light on the instrument she was using to check Aaron's ears).
Our next visit to Moorfields is in late February so we have almost two more months for Aaron's eyes to continue to improve!
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