We don't have to go back for three months now, and the Fellow we saw said that if the news continues to be good, we can then push back to every 4-6 months and then...at some point Aaron could be discharged. We never even considered that was a possibility. Everything we had read about congenital glaucoma indicated lifelong care, but then everything we read was about cases managed with more traditional surgeries: goniotomy or a regular trabeculotomy. So it's pretty exciting news.
Lots of milestones around here lately, with the six month anniversary of the surgery and Aaron's first birthday next week. It's been a bit of a wild ride. The congenital glaucoma was a major scare, sending our five-month old baby in for revolutionary pediatric eye surgery (in both eyes) was scary, and then the constant worry that the surgery wouldn't work or would somehow reverse have been heavy loads to carry. And we don't have family close by so Adam and I have done the brunt of this on our own.
With all of that said, we feel incredibly lucky right now. Lucky that it was a mild case of congenital glaucoma and that we caught it early, lucky that we found Mr. Brookes and Moorfields, and lucky that Aaron was a strong candidate for the 360 degree trabeculotomy. It's almost as if it all never happened and looking at Aaron, you wouldn't know he ever had anything wrong with him unless you really stare at his eyes (you can see a tiny bump where the scar is if you look very closely). He's quick to smile and laugh, he's pudgy and sweet and he loves to crawl, clap and climb stairs. Fingers crossed that Aaron's vision continues to develop normally and that the congenital glaucoma remains a distant memory.
